Alzheimer's caregivers and people with Alzheimer's disease crowded into a conference room in Washington today to beg the Advisory Council on Alzheimer's Research, Care and Services to get help.
The council -- a body created by the National Alzheimer's Project Act of 2010 (NAPA) -- is putting the finishing touches on the first annual update to the National Plan to Address Alzheimer's Disease, a document that's supposed to help the country come up with strategies for preventing or treating Alzheimer's by 2025.
Michael Ellenbogen, an author who has early-stage Alzheimer's, said he sees a lack of funding for research, a lack of geriatric care providers, and a lack of anyone with dementia on the advisory council or on many other bodies shaping policies that affect people with dementia.
Dr. Stephen Hume, a psychologist who helped start one of the first private employee assistance companies in Massachusetts, said he learned he has Alzheimer's five years ago. Since then, his income has dropped 75 percent, and he has had to declare bankruptcy.